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Wearing My Tragedy Like a Clunky Watch
If I’m being honest…I’m exhausted. I wouldn’t wish this condition on anyone.Not because I don’t have strength… but because this kind of strength shouldn’t have to exist.The loneliness that comes with it is overwhelming.And the truth? Talking about it makes people uncomfortable. But not talking about it?That’s what almost broke me. I live with…
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I’m tired.
I’m tired. Tired of being underestimated.Tired of being belittled.Tired of being left out of plans like I don’t exist…simply because I’m disabled.I’m tired of being treated like less than. As a quadriplegic with little to no help, I’ve still managed to accomplish so much.And yet… people only see the chair.Or worse…my past. Yes, I…
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Do SCI Patients Have Pain?
Oh, pain. My long-lost friend. Soulmate.How I wish you’d give me some time to miss you. As a recovering C6 Asia A complete spinal cord injury (SCI) survivor, pain is an all-day, every-day occurrence. Whether it’s: • The burning sensation that feels like frostbite meeting a heater,• The muscle exhaustion from overusing the few…
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This Wasn’t the Plan
This Wasn’t the Plan This is not how I pictured I’d be living my life at 34.But here I am.Every glorious inch of me wretched in pain…nerve pain, muscle pain, musculoskeletal pain…pain pain, if there is such a thing. Sitting on my shower chair,too tired to cry, too numb to scream.Smoking a blunt, balanced…